Great news all: we've solved the enzyme issue! I had been taking 9 Zenpep to have it barely work at all. See, I'm a bit different. I open the capsule and empty the content of it onto my tongue. I have no problems with taking any other sort of pill...just the enzymes. I know the only other alternative is Creon. So I finally told my doc and transplant coordinator and the switched me to Creon. Creon has way smaller contents. It's almost practically crushed so that's fairly hard to adjust to. I'm dealing though and my stomach is doing better. I was supposed to receive a phone call about my status for transplant by this past Friday but of course no information ever came. I left a message with Lauren, the coordinator. She was out of the office Friday so I hope I know by Monday. I'm currently sleeping with 02, doing an albuterol nebulizer every 3 hours, doing activities on o2. I can't stay off of antibiotics. They've switched me from Meropenem to Ceftaz. That doesn't seem to be working either. I feel we're at the end of the rope here and no one is taking me seriously. I AM sick for Pete's sake. I run a fever pretty constantly lately. Rehab has been great but today was a bad day. I've been exhausted and had a fever for most of it. On the up side....I bought my wedding dress Saturday!! It's so beautiful and different....very me. I can't wait to walk down the aisle in it. Waiting is the hardest part! Last night me, mom, and Andy took Mira trick or treating. She totally has the hang of it and definitely loves candy, haha. She was a pirate. So cute. She's so grown lately. She hugged me bye and says "I love you baby." Really? Oh goodness. I'll update soon. Love to all.

It's been a long while since I've updated. I've had the nissen surgery along with a j tube added to my g. It was a rather long recovery. I didn't want to eat for a long time. Had very bad nausea. When I was discharged from Duke, I came home and just slept. All day, all night, everyday. I didn't realize until after I was out of it, that I was depressed. My emotions are so up and down its insane. Seems like the Zenpep isn't working so well for me. I may need to switch enzymes yet again. I don't care anymore what brand it is....so long as I can start gaining weight. I'm currently down to about 87 lbs. I'm finally able to eat normally again, although my tummy did shrink so I can't eat nearly as much. I went wedding dress shopping yesterday! I do believe I've found "the" dress ;) Today was the last day of the fair, so mom, Mira, Demetrius, his mom, his neice, and I all went. I just wanted to see how Mira acted her first time out. She LOVED it! She's a little dare devil like mommy. I was so proud. Welp, tonight I'm just relaxing with the f and resting up for rehab tomorrow. I've finally completed ALL the testing for transplant screening. Tuesday the team will be discussing me and Fri I should know the verdict. So for now its get through rehab and gain weight. I'm ready for my second chance!!

Fall Finds

I came across some photos that were done for me for free about 2 years ago. Man, I wish I could wake up and look this good! LOL. I'm always bummin it in this hospital.

Way Seven: Accent

Ron Regular: How do I love thee? Let me count the ways.....7: Your Accent. I love thee like grandma loves her porch swing. I know I make fun and emulate the country accent. But the reality is is I love it! I love all accents. Always have. But there's always been something about a beautiful woman with one. And wouldn't you kn...ow it, I have a woman with a southern accent, who's absolutely breathtaking, and wants to only be with me. Talk about blessed. Amazingly enough, I had no clue you were that country until I met your mom. Wow. You could call it an awakening. You know what though, if this is my awakening I never want to go back to sleep.

September 30 at 12:58 am

Way Six: Dimples

Ron Regular: How do I love thee? Let me count the ways.....6: Dimples. There is nothing I think sets off your gorgeous smile like your dimples. Baby, you smile or make a poppysmic type movement with your mouth and I am putty. You have the most amazing dimples. I wish there was a way to bottle you and take you where ever I go. Your dimples are so friggin hot.

September 29 at 12:04 am

Way Five: Attitude

Ron Regular: How do I love thee? Let me count the ways.....5: Attitude. Your way of looking at things is constantly challenging me to be a better man. Your strength is undaunting. When you have your mind made up it is set in stone. Good or bad. You continually surprise me and make me proud to be your fiance. You are a fighter, a l...over, a nurturer, a comic, a mind changer, a listener, and an academic. All these things solidified by your ability to excel, improve, and create. You constantly surpass what I expect of you. I can't wait to see whats next.

September 28 at 1:10 am

Way Four: Laugh

Ron Regular: How do I love thee? Let me count the ways.....4: Your laugh. I don't even know how to explain the joy I get from hearing your laugh. I am so blessed to create the sweet sound of laughter with you daily. For some reason you think I'm funny...or a damn fool. either way your laugh makes me the happiest man in the world.... Its fitting that the other "ways" tie into this one as well. Eyes, smile, and unfortunately cf. The deep gut busting laughs are my faves. When I'm hopping around the house or bending over in front of you (that happens often and in a variety of ways LOL) my heart is full because I know you are happy. I waqnt our life to be full of laughter, joy, smiles, and happiness. The love we share is stronger because we can laugh together. I will do everything in my power to make sure you are continually laughing. It is truly the most beautiful sound to me.

September 27 at 12:28am ·