2nd Chances

Great news all: we've solved the enzyme issue! I had been taking 9 Zenpep to have it barely work at all. See, I'm a bit different. I open the capsule and empty the content of it onto my tongue. I have no problems with taking any other sort of pill...just the enzymes. I know the only other alternative is Creon. So I finally told my doc and transplant coordinator and the switched me to Creon. Creon has way smaller contents. It's almost practically crushed so that's fairly hard to adjust to. I'm dealing though and my stomach is doing better. I was supposed to receive a phone call about my status for transplant by this past Friday but of course no information ever came. I left a message with Lauren, the coordinator. She was out of the office Friday so I hope I know by Monday. I'm currently sleeping with 02, doing an albuterol nebulizer every 3 hours, doing activities on o2. I can't stay off of antibiotics. They've switched me from Meropenem to Ceftaz. That doesn't seem to be working either. I feel we're at the end of the rope here and no one is taking me seriously. I AM sick for Pete's sake. I run a fever pretty constantly lately. Rehab has been great but today was a bad day. I've been exhausted and had a fever for most of it. On the up side....I bought my wedding dress Saturday!! It's so beautiful and different....very me. I can't wait to walk down the aisle in it. Waiting is the hardest part! Last night me, mom, and Andy took Mira trick or treating. She totally has the hang of it and definitely loves candy, haha. She was a pirate. So cute. She's so grown lately. She hugged me bye and says "I love you baby." Really? Oh goodness. I'll update soon. Love to all.